HC directs Centre and State to release ₹5 crore for treating children with Lysosomal Storage Disorder

Both governments told to release 50% of sum by May 10

The High Court of Karnataka on Friday directed the Central and the State governments jointly release ₹5 crore to the Indira Gandhi Institute for Child Health, Bengaluru for meeting the expenses towards the treatment of 45 children suffering from Lysosomal Storage Disorder (LSD), a rare disease, for a period up to August 31, 2021. While directing the governments to release ₹3 crore and ₹2 crore respectively, the court directed both the governments to release 50% of this sum by May 10 as the IGICH, at present, has only ₹2.5 crore as against the requirement of around ₹6 crore till July 31, 2021. A Division Bench, comprising Chief Justice Abhay Shreeniwas Oka and Justice Suraj Govindaraj, issued the directions while hearing petitions by the LSD Society of India, New Delhi, through which the court is monitoring free treatment provided to children suffering from the rare disease.