LVPEI holds ‘Whitathon’ run to create awareness on Retinoblastoma

LVPEI's Whitathon raises awareness for early detection of Retinoblastoma in children, emphasizing the importance of vision-saving treatment.

The L.V. Prasad Eye Institute (LVPEI) organised the seventh edition of ‘Whitathon’ on Sunday, May 25, to raise awareness about the early detection of Retinoblastoma (a rare eye cancer) in children and its treatment. The event was held in commemoration of World Retinoblastoma Awareness Week, observed earlier this month. The run was flagged off at the Kali Mandir on the Beach Road, Visakhapatnam.

Dr. Suneetha G, adjunct ophthalmologist at LVPEI’s GMR Varalakshmi campus, emphasised the importance of creating awareness and educating young parents about the symptoms of Retinoblastoma and elaborated, “It is crucial to recognise the symptoms. If a white reflex is seen in a child’s eye, one should immediately get it examined by an eye specialist. Early detection and treatment can save the child’s life, eye, and vision.”

Retinoblastoma primarily affects children under three years of age. Loss of the “RB1 gene”—a” tumour suppressor gene, whose function is to stop cells from turning cancerous—is a major cause. Symptoms include a yellowish-white glow that appears in the pupil (the black part) of a child’s eye when light is shone on it, especially in photos taken with a flash. Other symptoms include poor vision, redness of the eyes, and squinting. The treatment usually involves multiple procedures and surgeries, with close monitoring over several months.

Dr. Virendra Sachdeva, Head GMR Varalakshmi campus, urged participants to spread awareness about the symptoms of Retinoblastoma. Funds from the Whitathon run will be utilised to provide free treatment to underprivileged children suffering from Retinoblastoma and for future research. This year’s event saw over 450 participants.

LVPEI has provided over 3,000 free treatments to date. Annually, the institute treats 150 to 200 new cases of Retinoblastoma and has managed to save the life of a child in 90% of cases. “However, we could save the vision of only 45% of these cases while 55% lost their vision because of late presentation,” said a representative of the group.

While eye cancer is rare, it can be life-threatening and lead to permanent loss of vision or even eye enucleation (removal of the eye) if not detected early. Unfortunately, lack of awareness leads to many cases being diagnosed only at an advanced stage, when treatment options become limited.