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制药救子的父亲:“我不希望他在绝望中等待死亡”

制药救子的父亲:“我不希望他在绝望中等待死亡”

BBC
Tuesday, December 07, 2021 07:51:43 PM UTC

仅有高中学历的徐伟,凭翻译软件钻研化学品专业名词,在云南昆明家中自行搭建实验室制药,被称为电影《我不是药神》的现实版。

徐伟的儿子在出生六个月时患上罕见的孟克斯氏症候群,没有办法像正常人一样从饮食中吸收铜,从而会出现全身肌肉萎缩等并发症。

徐伟试过带他到各地求医,但中国大陆并没有对症的药物。仅有高中学历的徐伟,凭翻译软件钻研化学品专业名词,在云南昆明家中自行搭建实验室制药,被称为电影《我不是药神》的现实版。

据罕见疾病组织估计,全球每100,000名婴儿中就有一名出生时患有这种疾病,目前没有药物能够治愈。

Read full story on BBC
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