Sask. teen fighting for funding to receive 24/7 care near his post-secondary school

Preston Ruzicka wants to attend post-secondary school near his family, but also wants some independence. Preston and his family are frustrated that the province is not helping him live where he wants.

Preston, 18, has Duchenne muscular dystrophy and uses a wheelchair. He is enrolled at Saskatchewan Polytechnic in Moose Jaw, an hour away from his family.

After a long search, his family found a place for him to live that provides 24-hour care.

The only catch is the cost will not be covered by the province, much to the dismay of Preston's mother Geraldine Ruzicka.

"Being able to live in an assisted living home, it would give Preston the ability to have his own little apartment with the care that he needs right outside that door. And they're denying that. Yet a wheelchair-accessible home is not that easy to come by. They're not just on every corner," Geraldine said.

Geraldine said the province offered to have Preston stay in Wascana Rehabilitation Centre in Regina, but not the senior's care home in Moose Jaw that the family has found. She said most long-term care facilities are for only seniors, have long waitlists, or cater to people with cognitive, rather than physical, disabilities.

"We've been told by Saskatchewan health that we should find three or four of his friends to live with him so that they can shower him and and put him on and off the toilet, and I don't know too many 18-year-olds that would want to do that with another, let alone have that done for them."

Geraldine said the home in Moose Jaw was the only place that would accept him based on his care needs.

"All we're asking for is the least expensive option to the taxpayers and dignity for our son, who unfortunately isn't able-bodied like his other friends and able to live wherever."

Geraldine said if she assists Preston financially, he will lose his benefits under the Saskatchewan Assured Income for Disability (SAID) program.

CBC reached out to the Ministry of Health for a response to the concerns raised by Preston and his mother. It provided a response Wednesday.

A spokesperson said the health and social services ministries were "aware of this case and committed to supporting individuals with complex needs in our province."

The statement said the province cannot comment on specific cases due to privacy legislation, but that "Officials continue to work with the family to confirm the specific care needs of the individual and make further determinations with respect to programs or funding."

The spokesperson said individualized funding is an option under the Saskatchewan Health Authority's (SHA) home care program, which allows people to live at home.