Eddie Vedder’s quest to help cure a rare disease subject of new documentary

“Matter of Time,” a documentary featuring legendary rocker Eddie Vedder premiering this fall at the Tribeca Film Festival, is being billed as much more than a concert film – it’s a rallying cry for action.

“Matter of Time,” a documentary featuring Pearl Jam frontman Eddie Vedder that is set to debut this summer at the Tribeca Film Festival, is being billed as much more than a concert film – it’s a rallying cry for action. A string of 2023 solo concerts in Seattle are the backdrop for the film, which chronicles Vedder’s efforts to raise funds for clinical research for Epidermolysis Bullosa, a rare genetic skin disease that causes blisters and skin erosion and predominantly affects children. Proceeds from those concerts were directed to EB Research Partnership (EBRP), a foundation co-founded by Vedder and his wife Jill, along with a group of families. The organization’s goal is to find a cure for EB by 2030. The film, according to a news release, “blends powerful music with the poignant, real-life stories of patients, families, researchers, and thought leaders, revealing how determination and innovation are paving the way toward a cure.” “We are so grateful to the music community, and the entire team who made these concerts and this film possible,” said Eddie Vedder in a statement, first provided to CNN. “This is a story of hope, resilience, and the power of community.” Jill Vedder, chairwoman of EBRP, added: “It’s amazing to witness how far we’ve come. Epidermolysis Bullosa may be rare, but through the tireless work of our community, our message is reaching more people than ever. This is more than awareness; it’s an urgent push to cure EB by 2030, and together, I know we can make it happen.”