Teens feeling burnt out from managing diabetes face higher complications, study says

Canadian teens and young adults living with diabetes face double the risk of hospitalizations and emergency room visits compared with younger children with the condition, say doctors suggesting changes to how care is organized for affected families. 

In Type 1 diabetes, the pancreas is unable to produce insulin, a hormone that allows the body to use glucose, a sugar, in food for energy. The estimated 300,000 Canadians with the chronic condition need to take insulin injections every day or use an insulin pump to survive.

People with Type 1 diabetes also need regular clinical checks since a loss of control over blood glucose can lead to serious eye and kidney complications, nerve damage that requires amputations, and even death.

In the October issue of the journal The Lancet Diabetes and Endocrinology, Dr. Meranda Nakhla, a pediatric endocrinologist at the Montreal Children's Hospital, and her team used Quebec health administrative data to estimate the risk of gaps in regular diabetes care for complications in children under 10, and adults up to age 23. 

"With adolescents and young adults, [the complication]  tends to be more related to an insulin omission and maybe just feeling burnt out from having diabetes and just not wanting to deal with it," Nakhla said. "They may stop taking insulin and a day later end up in the emergency room with diabetic ketoacidosis."

In diabetic ketoacidosis, there's too much acid in the body's fluids and it can result in the patient needing to be admitted to the intensive care unit. Nakhla said in teens and young adults, it tends to be preventable. 

Compared with kids younger than 10, the likelihood of diabetes-related visits to emergency increased 1.8 times from age 14-15. The number of visits increased to nearly 2.4 times for those aged 22-23 compared with the youngest children.

Part of the challenge, Nakhla said, is for parents to take a step back from managing all aspects of their child's diabetes to a more supportive role that allows the child to have more autonomy. 

Since age two, Max Lagrange's parents carefully planned their son's meals and snacks, checked his blood sugars and adjusted insulin doses. 

Max, now 15, started managing his diabetes on his own four years ago.

"As a teenager, I've [got] a lot of things to do, school and activities, so it's probably just finding the time and doing it by myself," Max said of the challenges. 

Max's mother, Maïa Kapahi, said he's doing a great job.

"Now he's roving the city with his friends, eating on his own, being active, and he's having to do all those calculations in his head," Kapahi said. 

But focusing on looking up how many carbs are in a fast food burger when out with friends in downtown Montreal may not be a priority, she acknowledged.