She's 14 months old and needs a drug that costs $2.1 million to save her life

One family is racing against time to treat Ayah, their 14-month-old daughter, who has a rare genetic disease. The gene therapy she needs, Zolgensma, has been called the world's most expensive drug.

Born in January last year at a whopping 8.3 pounds, the bubbly baby girl with dark curls and bright brown eyes hit all her developmental milestones. By six months, she was crawling and trying new foods. Bananas and mushy broccoli were her favorites. Avocados, not so much.