
She's 14 months old and needs a drug that costs $2.1 million to save her life
CNN
One family is racing against time to treat Ayah, their 14-month-old daughter, who has a rare genetic disease. The gene therapy she needs, Zolgensma, has been called the world's most expensive drug.
Born in January last year at a whopping 8.3 pounds, the bubbly baby girl with dark curls and bright brown eyes hit all her developmental milestones. By six months, she was crawling and trying new foods. Bananas and mushy broccoli were her favorites. Avocados, not so much.
Lawyers for Sen. Mark Kelly filed a lawsuit Monday seeking to block Secretary of Defense Pete Hegseth’s move to cut Kelly’s retirement pay and reduce his rank in response to Kelly’s urging of US service members to refuse illegal orders. The lawsuit argues punishing Kelly violates the First Amendment and will have a chilling effect on legislative oversight.

Hundreds of Border Patrol officers are mobilizing to bolster the president’s crackdown on immigration in snowy Minneapolis, Homeland Security Secretary Kristi Noem said Sunday, as tensions between federal law enforcement and local counterparts flare after an ICE-involved shooting last week left a mother of three dead.

Nationwide outcry over the killing of a Minneapolis woman by an Immigration and Customs Enforcement agent spilled into the streets of cities across the US on Saturday, with protesters demanding the removal of federal immigration authorities from their communities and justice for the slain Renee Good.










