'I'm proving everyone wrong': Actors with Down syndrome enjoying new era of media representation

Madison Tevlin went viral in 2015 when her YouTube cover of John Legend's All of Me blew up.

The Toronto teen had only intended family and friends to see it, but she's now racked up more than eight million views and is onto her next gig: a CBC show.

It's called Who Do You Think I Am, in which Tevlin interviews a roster of guests who are misperceived due to their exterior appearance.

Tevlin has Down syndrome, in which an individual is born with an extra copy of the 21st chromosome, leading to some cognitive and developmental disability. She wants to prove to the public that people with Down syndrome can do it all — and she's flashing her triple-threat status as an actor, singer and dancer to prove it.

"People may think that we can't do lots of things and assume things about us that [are] not always true," Tevlin told CBC News. "That we can't walk, we can't sing, can't dance, can't live on our own and can't do all these things.

"But actually, I'm proving everyone wrong."

As film, television and the arts become more inclusive and social media platforms like TikTok give the disability community a space to thrive and build an audience, individuals with Down syndrome have greater avenues for finding success in the performing arts.

There's still room for improvement, but advocates say representation is getting better.

"Media representation of people with Down syndrome — and people with disabilities in general — it's changing rapidly. It's becoming more mainstream," said Chelsea Jones, an assistant professor at Brock University in St. Catharines, Ont., who researches critical disability studies and disability media.

"We're seeing people with Down syndrome cast as more characters on TV shows, for example, which is really exciting, and it has sort of this effect of normalizing disability and showing us that people with Down syndrome are part of our culture and part of our society and part of our stories," Jones said.

According to the Canadian Down Syndrome Society, about 45,000 Canadians have Down syndrome, and one in 781 Canadians are born with it. While television characters with Down syndrome are an increasingly frequent occurrence, the overall landscape has been dry — and some depictions lean on stereotypes, making actors with Down syndrome feel misunderstood.

"I think people think that people with Down syndrome can't do a lot, and they feel sorry for us," said Lily D. Moore, an American actress best known for her role as Rebecca in Never Have I Ever, the Netflix comedy created by Mindy Kaling.

"We can go to college; we can own our own businesses. We want to live independently and we want to follow our dreams."

Like Moore, a handful of American actors with Down syndrome have had success, paving the way for others long after Chris Burke starred as Corky in Life Goes On. In 2019, Zack Gottsagen made headlines when he co-starred in the film Peanut Butter Falcon with Shia LaBeouf, later becoming the first person with Down syndrome to present at the Academy Awards.