I'm dying of a fatal disease. Bureaucrats shouldn’t decide how doctors can try to save me

At 23, I'm fighting a fatal disease that took the life of my brother. I work in biotech and know there are medical advances that might help. Government needs to let us try.

Elijah Stacy is a bestselling author, public speaker, Hollywood writer and producer, biotech consultant, and recognized Key Opinion Leader in the fight against Duchenne Muscular Dystrophy.  

I’m not alone; tens of millions of Americans suffer from rare diseases. And while I believe we have entered a "Golden Age" of personalized medicine tailored around a patient’s DNA, regulatory roadblocks often force us to wait years to access treatments that could help. We need to break through this logjam so patients can access cutting-edge treatments today.