How a 6-year-old with two rare disorders inspired a country song about Kenny Chesney
CNN
A 6-year-old with a rare combination of genetic disorders just got his big break in Nashville thanks to a nonprofit and some songwriters for Kenny Chesney, who helped him get through years of hospital stays.
Nash Hensley, of South Bend, Indiana, was born with two genetic disorders: achondroplasia, a bone growth disorder characterized by dwarfism, and phenylketonuria, or PKU, which causes the phenylalanine amino acid to build up in the body, according to the Mayo Clinic. PKU is caused by a defect in the gene that produces the enzyme needed to break down phenylalanine, so Nash is required to live on a restricted, low-protein diet. Hensley's mother, Angela, told CNN she didn't know her son would have either until days after he was born. She said doctors told her they believe Nash is the only child in the United States to have both disorders.More Related News
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