Critically ill toddler stuck in government bureaucracy can't wait: supporters
CTV
The fate of a toddler suffering rare and painful syndrome remains in limbo with the federal government, frustrating supporters in London, Ont.
The fate of a toddler suffering rare and painful syndrome remains in limbo with the federal government, frustrating supporters in London, Ont.
“I really try not to turn my mind to thinking of the situation they are in and the state of the baby. It’s stunning, how can we do this?” says Martha Macrae an advocate fighting to get Tim to Canada.
‘Tiny Tim’ as he’s become known, suffers from butterfly syndrome (epidermolysis bullosa). The genetic condition causes blistering sores, persistent itching and can prohibit swallowing. In severe conditions, like Tim’s, skin becomes as fragile as butterfly wings.
Tim currently resides in the basement of abandoned home in Beirut, Lebanon with his parents, Ezzeddin and Midia. The family fled war-torn Syria.
Ezzedin’s brother, Mustafa, and his family reside in London.
Macrae become involved in Tim’s case after serving as a volunteer helping to settle Mustafa’s family, which includes 10-year-old Amin. He also suffers from butterfly syndrome.
Since hearing Tim’s story Macrae has raised over $40,000, mostly from Londoners, in the hopes of bring the family to London.
