Assamese writer Sarmistha Pritam Baruah seeks government aid for medical treatment
The Hindu
She has spinal muscular atrophy, treatment of which runs into crores of rupees
An Assamese writer has sought support from the State government for treatment of spinal muscular atrophy (SMA), a rare degenerative neuromuscular disease that requires medicines – now available in India – worth at least ₹4 crore at ₹72 lakh per annum for up to nine years.
Sarmistha Pritam Baruah, based at Phulaguri in central Assam’s Nagaon district, has also advocated a health scheme for people with SMA.
Following her appeal, Assam Health Minister Keshab Mahanta visited the wheelchair-bound Ms. Baruah at her residence on August 22. He had assured her of action after discussion with Chief Minister Himanta Biswa Sarma.
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