A stuntman knew his body was changing. It took doctors nearly a decade to figure out why.

When Ray Kohn started feeling pain in his knees and elbows in 2015, he attributed it to his work as a stunt driver and mechanic.

But as the years went on, he began to notice his body changing in unusual ways: His head grew so much that he needed a larger helmet, and his hands became so big he had to have his wedding ring resized three times. His voice changed. His teeth shifted in his mouth, creating an underbite. He gained over 100 pounds despite his extremely active lifestyle, and he was constantly hungry no matter what he ate. 

Meanwhile, the pain in his knees and elbows continued. Cortisone shots, meant to reduce inflammation and pain, never lasted long. In 2019, he had the first of three knee surgeries. Later, he'd have operations on his elbow. Nothing worked. No doctor he saw had an answer — even as knee pain forced him to cling to the wall to walk.