A Dad Races To Make Medicine For His Dying Son, Just Two Years Old
NDTV
Haoyang has Menkes Syndrome, a genetic disorder that impacts how copper -- which is crucial for brain and nervous system development -- is processed in the body.
Two-year-old Haoyang has likely just months to live -- but the only medicine that can help his rare genetic condition is not found anywhere in China and closed borders due to the Covid-19 pandemic mean he cannot travel for treatment.
Instead, his desperate father, Xu Wei, has created a home laboratory to create a remedy for the boy himself.
"I didn't really have time to think about whether to do it or not. It had to be done," the 30-year-old told AFP from his DIY lab in a high-rise apartment building in southwestern Kunming.
Haoyang has Menkes Syndrome, a genetic disorder that impacts how copper -- which is crucial for brain and nervous system development -- is processed in the body.